I'm a telemarketer. I do cold calls. It's not glamorous. It's not chill. It's not perfect. It's certainly not a career move. It is, however, a job where my employer is happy for me to work a single weekly shift and sit down the entire time. It is also the job I managed to land … Continue reading The etiquette of unlawful discrimination
Over the last two days, I've overdone it. And by overdone it, I mean doing a single load of laundry, doing the dishes, wiping down the bench, taking measurements to hang some artwork, and putting out some rubbish. Two. Days. My body is on fire, I cannot sleep, I'm now couch-ridden, and I am angry. … Continue reading Fury
A couple of months ago I was beginning to wonder with increasing frequency if I was "really" sick. Off the back of eighteen months of high stress, I was coping surprisingly well. Sure, I was tired - but don't we all get tired when faced with stressor after stressor with no respite in between? My … Continue reading The downside of adrenaline
I've been away. In the wake of the election of Donald Trump as president of the United States, I'd drafted a post about withdrawing from a lot of my political activities. I decided to take a break from the things that seemed to be dragging me down so that I could focus on myself and … Continue reading Hiatus.
I grew up in a highly academic family. Both of my parents and one of my siblings are doctors: it was MS and Parkinson's, diabetes and cancer that were discussed around the dinner table. It's therefore not much of a surprise that I internalised a lot of the medical community's attitudes toward misunderstood illnesses like CFS/FM. One … Continue reading Perceptions.
I'm 23. I fell ill when I was 18 - five years of my life learning to deal with this illness. Over that period I have faced a thousand other battles, and this meant for much of that time my CFS/FM was quite literally the least of my problems. Because of this, a lot of the experiences … Continue reading I still have a lot to learn.
I'm not sure if it's possible to overstate the importance of having hobbies as a spoonie. Stress relief and an increase in happiness are just two of the many psychological benefits that engaging in enjoyable pastimes can bring, which is perhaps even more important when you're struggling with a disability that can often be isolating and … Continue reading Hobbies and social lives (a.k.a. how to stay sane)